Friday, April 8, 2011

Life inside the CICU

Here I sit by Xavier's bedside through his first night after surgery~man this place is hopping at night, they never stop!  I have never seen so many machines hooked up to one little boy~they have 11 syringes hooked up to him all at once!  It is so amazing the technology and I am actually learning so much! I am ready for my medical degree after all this is said and done!  

The doctors are about to do another eco-cardiogram to make sure everything is running properly in his heart because they think he is retaining more fluid, even on lasiks, than is typical (basically he is not having enough output of urine).   They are also going to be drawing some labs as well.  So pray those all come back normally and they don't find that there is another problem or "pothole" in the road as someone on FB referred to these things as :)  

While he is in the CICU (Cardiac Intensive Care Unit) they turn or rotate him every 2 hours.  This way he doesn't get bed sores or fluid doesn't build up in his lungs.  His legs are elevated too with little tiny pillows~just too cute!  Yes, even while he is sedated, and tubes and wires coming out from his tiny body I find "cute" things in all of that mess.  

I am still in amazement at the fact that the doctor was so surprised at the size of the PDA (the artery that he was suppose to close in the beginning) he had never seen one so huge and was shocked that "he made it these past 2 months", meaning, he is curious how he is still alive today without it being fixed.  That was his justification in not knowing that he closed off the wrong artery, because he didn't think the PDA could be that large. God is keeping this little boy alive for something.  Maybe this little guy will be a great heart surgeon someday and save other babies lives!  But as of right now he is such a wonderful testimony for the power of prayer!  There have been people all over the world praying for his life~people from Australia, Denmark, United Kingdom, Bangladesh, Beijing, Brazil, Hawaii, Alaska, California, Texas, Washington, Indiana, Florida, Maine, Massachusetts, Pennsylvania, Ohio, Connecticut, New Hampshire, New York, New Jersey, Montana, Missouri, Tennessee, Georgia, North Carolina, and Washington DC. I apologize if I left anyone out of my list, but in all seriousness~look at all those countries and states~ 6 countries and 21 states! AMAZING!  This is one little boy who is only 8 weeks and 2 days old and known all around the world and being loved and prayed for so much~doesn't that just give you chills and tears to your eyes!  I know it does to me.  I am so blessed to be called his Mommy, and I cannot wait for those words to one day be spoken by his little mouth! 

Colossians 4:3 "Devote yourselves to prayer, keeping alert in it with an attitude of thanksgiving"

Philippians 4:4-7 "Rejoice in the Lord always; again I will say, rejoice!  Let your gentle spirit be known to all men.  The Lord is near.  Be anxious for nothing but in everything by prayer and supplication with thanksgiving let your requests be made known to God.  And the peace of God which surpasses all comprehension, will guard your hearts and your minds in Christ Jesus."


3 comments:

  1. You write so well! You are amazing!I am sitting at my computer reading and rereading all your blogs and just sobbing. I do not want to wish time away but look forward to seeing him grow and run around and he will so appreciate looking back at all the LOVE, support and prayers he received! Hugs and GOD BLESS! Amiee

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  2. See even though we work the night shift we never sleep, we run like chickens with our heads cut off sometimes, and go 12 hours without going to the bathroom! But don't worry we work so you can rest! I know that is hard but you need to rest a tiny bit here and there. Love you and hope he has a good night!

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  3. Thinking and praying for you! I was so glad you are keeping your faith through this all, what a testament to all! I believe his story will not only lead him to great things but you all!

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